Barriers Faced By the Developmentally Disabled

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CEREBRAL PALSY

It is a non progressive neuromuscular disorder causing mild to severe disabilities throughout life. This condition is manifested as a group of persisting qualitative motor disorders which appear in young children due to damage to the brain during delivery or due to some pathological conditions in the intrauterine life. The neurological problems are multiple but non progressive in nature. Approximately 2 per 100 live births are having this problem. This disease is having no hereditary tendency.

Content Source: Bukisa - CEREBRAL PALSY

How To Cope With Children That Have Cerebral Palsy

Content Source: Bukisa - How To Cope With Children That Have Cerebral Palsy

Web Links

Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disorders, Cerebral Palsy 

Cerebral Palsy Symptoms

MayoClinic.com

National Institute of Neurological Disorders and Stroke, National Institutes of Health, Cerebral Palsy: Hope Through Research

March of Dimes, Cerebral Palsy

Nemours Foundation, Cerebral Palsy

American Academy for Cerebral Palsy and Developmental Medicine

I have found MANY families (parents and individual adults) seeking alternative treatments for  many disorders including parents of children with CP and adults living with Cerebral Palsy.  I think I can make a statement that is all inclusive that the goals are about finding alternatives to IMPROVE QUALITY OF LIFE! I knew a grandfather who had custody of his grandchild.  He created so many new contraptions to help her. He was amazing. He knew as her caregiver what she needed and when they couldn’t find something they could buy he made it.

People in general really take for granted things that they do daily. Maybe even some parents without meaning to do so.  I know no matter what challenges a child is facing parents worry about what will happen to their children without them.  I mean what is the role of a parent other than to prepare their child for adulthood. For some families that is significantly more complicated than for others.  Quality of life is nota fancy house or clothes and gourmet foods or video games. Its walking talking, toileting, showering!  Communicating needs and wishes!  I am sure the list can go on.  How many parents out there have been told “your child will never…. Walk, see, talk, FEEL and EXPRESS.  I commend those parents out there seeking alternatives to improve the quality of life for their child(ren). There are those who criticize parents not out on the warpaths, however there is no place for that here.  And there are those who criticize parents that do and again there is no place for criticism here.  We are all on different journeys.  

This story is about one young boy’s journey of hope. His name is Jacob. He is 5. Jacob is diagnosed with Cerebral Palsy, Cortical Visual Impairment, due to the damage done in the brain his optic nerves were underdeveloped,  and Seizures. His mother and father share his story for him.

 I have never met a more loving family and I am honored that they allow me to share their story on Hope Magazine Online and to be a part of their fundraising efforts to return to China for stem cell treatments. I sincerely hope that all who hear and read about Jacob will see the angel this young boy is and support their endeavors anyway they can. Please email us here at if you would like to help even if you are not in Illinois.

Disclaimer:  Publication of this story and treatment plan should not be considered a recommendation by Hope Magazine Online as results are not typical and can vary. The information presented on this site is not intended as medical advice. Its intention is solely informational. There are amazing stories out there but please consult a medical or healthcare professional before starting any new treatment or therapy. DO YOUR OWN RESEARCH. There have been reports of several clinics that are not good ones. I can’t legally list them there but there are many support groups out there for stem cell treatment and therapies, please take the time to visit them and talk to others.

This story is about one young boy’s journey of hope. His name is Jacob. He is 5. Jacob is diagnosed with Cerebral Palsy, Cortical Visual Impairment, due to the damage done in the brain his optic nerves were underdeveloped,  and Seizures. His mother and father share his story for him.

 I have never met a more loving family and I am honored that they allow me to share their story on Hope Magazine Online and to be a part of their fundraising efforts to return to China for stem cell treatments. I sincerely hope that all who hear and read about Jacob will see the angel this young boy is and support their endeavors anyway they can. Please email us here at if you would like to help even if you are not in Illinois.